Advance Will: Ensuring the Right to Autonomy for People with Mental Disabilities
DOI:
https://doi.org/10.15290/eejtr.2019.03.02.05Słowa kluczowe:
advance will, advance directives, right to autonomy, mental illness, mental disability, mental health, mental health careAbstrakt
People with chronic mental illnesses (e.g. bipolar disorder, schizophrenia, dementia, etc.) find it hard to maintain normal and independent everyday life. Due to these illnesses, people usually lose competence to make autonomous decisions about their treatment. However, in some cases those people are still competent to make reasonable decisions before the times of relapse or at the early stage of disease. As a possible solution, some jurisdictions offer instruments to express a patient’s will in advance (e. g. advance directives), where mentally ill patients may state their treatment and care preferences for the future time of incompetency. Although there is a lot of criticism presented by the scholars, legal instruments based on advance will may undoubtedly contribute to ensuring mentally disabled patients’ fundamental rights and quality of life. Therefore, this article will include an introduction of advance directives, the advantages this tool represents and discuss main regulation challenges.
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Bibliografia
Appelbaum, P. S. (1991). Advance Directives for Psychiatric Treatment. Psychiatric Services, 42(10), 983–984. https://doi.org/10.1176/ps.42.10.983.
Brådvik, L. (2018). Suicide risk and mental disorders. International Journal of Environmental Research and Public Health, 15(9). https://doi.org/10.3390/ijerph15092028.
Brodoff, L. E. (2010). Planning for Alzheimer’s Disease with Mental Health Advance Directives. Seattle University School of Law Digital Commons, 239.
Burch, M. (2017). Autonomy, respect, and the rights of persons with disabilities in crisis. Journal of Applied Philosophy, 34(3), 389–402. https://doi.org/10.1111/japp.12248.
Clausen, J. A. (2015). Making the case for a model mental health advance directive statute. Yale Journal of Health Policy, Law, and Ethics, 14(1), 1–65.
Corrigan, P. W., & Watson, A. C. (2002). Understanding the impact of stigma on people with mental illness. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 1(1), 16–20. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/16946807%0Ahttp://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=PMC1489832.
Dunlap, J. A. (2000). Mental health advance directives: having one’s say? Kentucky Law Journal (Lexington, Ky.), 89(2), 327–386. https://doi.org/10.2139/ssrn.2455720.
Duxbury, J. (2015). Minimizing the use of coercive practices in mental health: the perfect storm. Journal of Psychiatric and Mental Health Nursing, 22(2), 89–91. https://doi.org/10.1111/jpm.12206.
Elbogen, E. B., Swartz, M. S., Van Dorn, R., Swanson, J. W., Kim, M., & Scheyett, A. (2006). Clinical Decision Making and Views About Psychiatric Advance Directives. Psychiatric Services, 57(3), 350–355. https://doi.org/10.1176/appi.ps.57.3.350.
Gooding, P. (2013). Supported decision-making: A rights-based disability concept and its implications for mental health law. Psychiatry, Psychology and Law, 20(3), 431–451. https://doi.org/10.1080/13218719.2012.711683.
Gooding, P., Mcsherry, B., Roper, C., & Grey, F. (2018). Alternatives to Coercion in Mental Health Settings: A Literature Review. Melbourne Social Equity Institute.
Khazaal, Y., Chatton, A., Pasandin, N., Zullino, D., & Preisig, M. (2009). Advance directives based on cognitive therapy: A way to overcome coercion related problems. Patient Education and Counseling, 74(1), 35–38. https://doi.org/10.1016/j.pec.2008.08.006.
La Fond, J. Q., & Srebnik, D. (2002). The impact of mental health advance directives on patient perceptions of coercion in civil commitment and treatment decisions. International Journal of Law and Psychiatry, 25(6), 537–555. https://doi.org/10.1016/s0160-2527(02)00182-6.
Mahon, M. M. (2011). An advance directive in two questions. Journal of Pain and Symptom Management, 41(4), 801–807. https://doi.org/10.1016/j.jpainsymman.2011.01.002
Mental Health Foundation. (2016). Fundamental facts about mental health. Mental Health Foundation, 89. Retrieved from https://www.mentalhealth.org.uk/sites/default/files/fundamental-facts-about-mental-health-2016.pdf [11.12.2019].
Nicaise, P., Lorant, V., & Dubois, V. (2013). Psychiatric Advance Directives as a complex and multistage intervention: A realist systematic review. Health and Social Care in the Community, 21(1), 1–14. https://doi.org/10.1111/j.1365-2524.2012.01062.x
Pinto, R. Z., Ferreira, M. L., Oliveira, V. C., Franco, M. R., Adams, R., Maher, C. G., & Ferreira, P. H. (2012). Patient-centred communication is associated with positive therapeutic alliance: A systematic review. Journal of Physiotherapy, 58(2), 77–87. https://doi.org/10.1016/S1836-9553(12)70087-5.
Ritchie, J., Sklar, R., & Steiner, W. (1998). Advance directives in psychiatry: Resolving issues of autonomy and competence. International Journal of Law and Psychiatry, 21(3), 245–260. https://doi.org/10.1016/S0160-2527(98)00017-X.
Samanta, A., & Samanta, J. (2005). The Human Rights Act 1998 - Why should it matter for medical practice? Journal of the Royal Society of Medicine, 98(9), 404–410. https://doi.org/10.1258/jrsm.98.9.404.
Sellars, M., Fullam, R., O’Leary, C., Mountjoy, R., Mawren, D., Weller, P., … Silvester, W. (2017). Australian Psychiatrists’ Support for Psychiatric Advance Directives: Responses to a Hypothetical Vignette. Psychiatry, Psychology and Law, 24(1), 61–73. https://doi.org/http://dx.doi.org/10.1080/13218719.2016.1198224.
Srebnik, D. S., & La Fond, J. Q. (1999). Advance directives for mental health treatment. Psychiatric Services, 50(7), 919–925. https://doi.org/10.1192/pb.27.11.437-a.
Swanson, J. W., McCrary, S., Van, Swartz, M. S., Elbogen, E. B., & Van Dorn, R. A.(2006). Superseding psychiatric advance directives: ethical and legal considerations. The Journal of the American Academy of Psychiatry and the Law, 34(3), 385–394. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/17032962 [11.12.2019].
Swanson, J. W., Swartz, M. S., Elbogen, E. B., Van Dorn, R. A., Wagner, H. R., Moser, L. A., Wilder, Ch., & Gilbert, A. R. (2008). Psychiatric advance directives and reduction of coercive crisis interventions. Journal of Mental Health, 17(3), 1–14. https://doi.org/10.1080/09638230802052195. Psychiatric.
Swartz, M. S., Swanson, J. W., & Elbogen, E. B. (2004). Psychiatric Advance Directives: Practical, Legal, and Ethical Issues. Journal of Forensic Psychology Practice, 4(4), 97–107. https://doi.org/10.1300/j158v04n04_07.
United Nations. (2006). Convention on the Rights of Persons with Disabilities and Optional Protocol, A/RES/61/1. https://doi.org/10.1057/palgrave.development.1100310.
Wilder, C. M., Elbogen, E. B., Swartz, M. S., Swanson, J. W., & Van Dorn, R. A. (2007). Effect of Patients’ Reasons for Refusing Treatment on Implementing Psychiatric Advance Directives. Psychiatric Services, 58(10), 1348–1350. https://doi.org/10.1176/appi.ps.58.10.1348.
Winick, B. J. (1996). Advance directive instruments for those with mental illness. University of Miami Law Review, 51(1), 57–95.
World Health Organization. (2001). World Health Report. Retrieved from https://www.who.int/whr/2001/media_centre/press_release/en/ [11.12.2019].
World Health Organization. (2019). Mental Disorders. Retrieved from https://www.who.int/news-room/fact-sheets/detail/mental-disorders [11.12.2019].
Žaliauskaitė, M. (2015). Mental Health Advance Directives: Could This Type Of Contract Exist Under Today’s Law In Lithuania? Vytautas Magnus University. Retrieved from https://vb.vdu.lt/object/elaba:8768771/ [11.12.2019].
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Prawa autorskie (c) 2019 Eastern European Journal of Transnational Relations
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